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It would take 10 years before genomic testing would finally diagnose Edmond with an extremely rare neuropathy and support in providing a treatment with life-changing results.

Paediatric patients across NSW will now have better access to advanced technology which provides live saving critical care and life support, thanks to the Kids ECMO Referral Service (KERS).

The natural surroundings of the Randwick and Westmead areas inspire the colourful and textured facades of the new hospital buildings under construction.

Maddy's sister, Sienna, was born with Spinal Muscular Atrophy in 2008. Soon after, the family were introduced to Bear Cottage. Sadly, Sienna died at age 2, but Maddy has remained part of the Bear Cottage family ever since.